I had my intake interview today and they are going to work through scheduling appointments and getting records. 2 hours went pretty quick. She said I will hear back soon.
I’m looking at this as a new chapter in my life and new opportunities to enjoy the small things without so much anxiety and pain. Prayers are always welcome.
My social security hearing for the appeal was rescheduled for October. Since I have alot to add to the case it is probably for the best.
I should be forever thankful for the amazing people in my life. I most likely should have been dead. I also had always remarked that I wanted to be a DNR. Because that was not in writing, it isn’t something that was applicable or my choice in the instance of caring for me. We as a family learned how difficult it is to pickup pieces; like paying monthly bills and other legal matters. We will each have a power of attorney for each other after this. Advanced directives and donor information will be on file. Important choices that aren’t always remembered when the scary situations occur. My husband really did a great job doing this while starting a new job and being there with me. My Mom and Brother also working with him so my Mom could be there. My son had just moved to the alternative school and spent alot of time with me in the icu. So many wonderful AHN employees telling me what a wonderful son I have.
After they had me stable and were discussing progress forward and questions about my health history, my son had picked up my health alert bracelet and wore it daily. He showed the hospitalist how to use the scan and he got all the info he needed etc. That hospitalist was impressed that a young teenager was able to discuss and offer solutions. I’m so very proud of him. I’m very lucky to have this close knit group of individuals that sent cards, texts nightly or even more often to my family to see how I was doing. An uncle drove my Dad to see me. I received cards and a beautiful bouquet once I was out of the icu. When I was in the icu some very special cards decorated my wall just waiting for me to be able to see them. My cousin and her daughters were in Pittsburgh for their own appointments and stopped over and it was so lovely even for the brief visit. Others so graciously gave my husband cash for parking and gas. When he told me that, I was so greatly touched. If I haven’t been able to thank you properly in person please know that everything and especially the prayers were more than appreciated. My friend Timmy and his wife also visited. Goodness it was a particularly goofy day on my part. My Mom told me and I was so sorry I couldn’t remember more of the day. They are a special couple. A few weeks later he even brought me the cutest stuffed animal to my Mom to give to me since I had moved to the new hospital.
The severity of my attempt made it necessary by the hospital to insist on having a person watching or sitting with me 24/7. This was even during the times family was there. The nights my Mom didn’t stay these men and women became my companions because I couldn’t sleep or just to talk about life, kids, goals etc. I often had the same person multiple times and that was nice. They saw such a difference from the icu to the first shower and just helped me alot. Even when I was not always the easiest to deal with or just needed a dark room with no beeps and noises for a nap. They always would ask about my Mom if she wasn’t there. I had a few young ladies that spoke English as well as their own country’s native languages and it was interesting learning about them and looking at pictures. We shared alot of pictures once I got my phone back. They accompanied me to therapy sessions and assisted the nurses and aides too. Great group of people let me tell you. Sharing and talking made me able to start the physical healing process and get thru that to move on to the next step. Top notch staff for the most part no complaints. I made sure I told them this every chance I got!